Monday, September 23, 2013

They Will Not Take Care of You


Do not kid yourself when you are in a hospital, a rehab center, a nursing home or any similar place: They Will Not Take Care of You.

I have been in hospitals and rehab centers more than once. In each case I thought I would be safe. In most, I was not. There were good staff members but there were also awful ones. The extent you could take care of yourself depended on how sane or coherent you were.

Once I was in a psychiatric hospital. I was horribly depressed. Words could not begin to describe it. I got sicker and sicker and finally the stupid psychiatrist who put me there decided I had full dementia. 

Yes, I know I used the adjective “stupid.”

The staff people there were horrible. As I got worse, so did they. They had treated us with contempt before; as I became helpless, they just ignored me. I am sure they treated other disturbed patients the same way. One nurse had responsibility for an entire floor; the rest of the staff were aides who did not want to deal with sick people.If you did not need the nurse, you did not see her.

Think of that. The aides did not want to deal with sick people. Yes, it was a psychiatric hospital but several people I knew before I became incoherent were also physically sick. 

I would have died from what the psychiatrist called dementia, but I did not have that. In a moment of good fortune, my doctor saw a neurologist walk into the hospital. He asked him to look me over to confirm that I was demented. 

In one of my luckiest moments, the neurologist immediately saw what was wrong with me.  He sent me to a “real” hospital where a neurosurgeon removed a meningioma, a benign tumor, from my brain in an emergency operation. The meningioma had caused the pressure that drove my depression over several years, which ended in dementia-like symptoms.

That episode was not my only encounter with terrible staff people. I was in a rehab center near my home recently after another meningioma operation. For the second time, I had to learn to walk again.

This was an instructive time because when I entered the center I was a bit off-center, to put it mildly. I felt as if I was fine but I did things like falling out of wheel chairs. And, occasionally, I would say things that didn’t make sense.

That gave the hostile aides a chance. I learned quickly how mean they could be. Luckily, I was usually OK and could call them on it. Soon those people avoided my room, and I made friends with the pleasant staff members.

And that was not all I’ve been through. I’ll stop listing specific instances but they have been way too numerous.

Why am I starting this blog with this story? I want to let you all know that you must be aware of what is going on around you. You must be aware of what can happen if you lose the ability to speak up for yourself. You must be sure you have a family member or close friend who will take care of you.

I know that is not always possible, but you must try. And I’ll close with a story that I think makes my point better than anything I’ve lived through.

I have often believed that people with a whole lot of money can buy the best care. That is not always true.

A wealthy friend of mine has a severely demented relative who is in a very expensive nursing facility. I was sure she was getting the best care. But when I spoke with my friend not long ago, he said hated the days he or other relatives couldn’t get there.

He is sure that the woman they love is left wet and possibly unfed if they aren’t present.

I guess the lesson in this is that money certainly helps but it doesn’t guarantee perfection. Very poor people or very rich people may be in settings where they are correctly cared for. The rest of us have to take care of ourselves as well as we can.

4 comments:

karen said...

How weird BeBe I just had a conversation with a friend about this very thing today. I had a frightening experience in a private hospital. As an ex carer in the community myself, I know how hit and miss good carers on low pay can be. I have told my husband if I become incapacitated due to my tumour, he is to employ a full time carer for me at home. I have also made sure I have signed a medical proxy and told family members who would have to make medical decisions for me if I can't. Great first post Bebe. Karen x

Madagascar said...

On the other hand I had to lie about having a friend, said was just a neighbor who I paid to give me a ride, when out patient surgery at a center in Sarasota Memorial went wrong. I was on oxygen with an IV drip when they wanted to release me "in my friend's care." I ended up in ICU ! It was also my great fortune that my internist, my GP in my mind, came across me later in the day, still in the "recovery area" and agreed I should not go home alone.

Anonymous said...

Bebe, this is great! I think it is good for you and I think it will be a place where others besides you will share their experiences and by doing so feel better in some fashion. p.s. I had to use my AIM profile because I don't know how to get an open ID url

Unknown said...

Joan McKniff, I have no idea what an open ID url is! I think this is you because I just read an email about the comment and I think it came from you. My memory doesn't last that long. But as I told you, I plan to spend a lot of time on this blog working out the details but it won't be tonight. I've spent several hours dealing with Apple and I think I have my machines in better order. Getting older is no fun. Right not I'm going to post something quickly, go to FB for a while and then have wine. Wish you were here to have some with me!